“For most families and disabled adults this advocacy journey is “a marathon, not a sprint.” The emphasis must be on taking care of yourself and your family in order to take on the long-term role of advocate. Don’t underestimate the value of getting some exercise, having a routine, eating well, laughing, taking deep breaths to relax, and surrounding yourself with positive people. This can be hard to do sometimes when facing so many challenges. Also, remember that each member of a family is important and should have his or her needs valued and met….Don’t get lost in the fight for disability services, school services or insurance coverage.” – Special Needs Subcommittee of the Massachusetts Chapter of the National Academy of Elder Law Attorneys.
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